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About HAM-net

HAM (HTLV-1 Associated Myelopathy) is a rare nerve disease afflicting few patients, and because the patients are scattered widely at various medical institutions, a major cause of the lack of progress in developing a cure or improving patient conditions has been a lack of centralized information gathering. Consequently, this website was established to collect information from patients all over the country concerning their symptoms, progress, and treatments in the hopes of clarifying the facts concerning HAM and its origins. There is a connection between gathering information from large numbers of individual patients and finding a cure. Still, in order to find a cure, it is necessary to implement clinical trials/clinical studied utilizing both existing and new treatments. In order for this to go smoothly, cooperation from a great number of patients is necessary, and so it is important that we are now able to use our registration system to notify everyone of information regarding clinical trials/clinical studies. As a result, it is expected that research concerning the development and establishment of a cure will be able to advance steadily. This project is being conducted in accordance with the Research Department of the Ministry of Health, Labor, and Welfare. The following members play a central role in the research towards the establishment of new treatment methods for HAM and the management of this website.



Principal Investigator :
YAMANO Yoshihisa, St. Marianna University School of Medicine

 

Contributing Researchers:
KIKUCHI Seiji, Hokkaido Medical Center
FUJIWARA Kazuo, Tohoku University
HASEGAWA Yasuhiro, St. Marianna University School of Medicine
NAKAGAWA Masanori, Kyoto Prefecutural University of Medicine
TAKENOUCHI Norihiro, Kansai Medical University
NAGAI Masahiro, Ehime University
KIRA Jun'ichi, Kyushu University
NAKAMURA Tatsufumi, Nagasaki University
TAKASHIMA Hiroshi, Kagoshima University
TOKASHIKI Takashi, University of the Ryukyus
SAITO Mineteru, Kawasaki Medical School
UEDA Koji, RIKEN
SOTOMARU Shino, Hokkaido University
UENO Takahiko, St. Marianna University School of Medicine
MATSUMOTO Naoki, St. Marianna University School of Medicine
AOTANI Eriko, Kitasato University
TAKADA Reiko, St. Marianna University School of Medicine

 

Collaborating Researchers:

IZUMO Shuji, Kagoshima University
HOKAZU Yoichi, Oita Prefectural Hospital
MATSUZAKI Toshio, Taisho Hospital
YAGISHITA Naoko, St. Marianna University School of Medicine
SATO Tomoo, St. Marianna University School of Medicine
SHINTANI Natsumis, St. Marianna University School of Medicine
HASHIMOTO Mitsuyo, St. Marianna University School of Medicine
INOUE Eisuke, Kitasato University

[titles omitted]


Details about our research  
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This is supported by project “Research on Measures for Intractable Disease,” a matching fund subsidy from the Ministry of Health Labour and Welfare