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Top page About HAM-net About HAM - -
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About HAM
- A simple introduction to the disease called HAM
HAM (HTLV-1 Associated Myelopathy) is a disease associated with HTLV-1 (Human T-lymph tropic virus type-1) that produces symptoms including lower paralysis and painful urination. A study conducted in Japan in 1986 estimated that approximately 3,000 patients nationwide were battling this disease, and in 2009 it was officially recognized in Japan as an incurable disease requiring counter-measures to be taken. It is estimated that there are 1.08 million people nation-wide infected with HTLV-1. However, only about 0.3% of infected individuals develop HAM, with the vast majority of those infected remaining asymptomatic.
Details about HAM
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About our research
- A simple introduction to our research on HAM

HAM is a rare nerve disease, and the few afflicted patients are scattered widely across various medical institutions. This means there is a severe lack of centralized information, a problem that considerably slows the process of developing effective treatments and improving patient quality of life. Therefore, we encourage patients to register themselves in our system so that we can track their progress and efficiently collect the information necessary to fully understand HAM. In order to find an optimal treatment or even a cure, we must conduct clinical trials with various treatments, and for this we need the cooperation of a great many patients. We believe that if we can succeed in this if we all work together, and so the key is to use our registration system to exchange information: to instruct patients and notify them of new studies as well as receive patient feedback and learn about their needs. We thank you in advance for your cooperation.

-Details about our research
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This is supported by project “Research on Measures for Intractable Disease,” a matching fund subsidy from the Ministry of Health Labour and Welfare